Palliative care is an important component of Batten disease treatment that focuses on symptom management and quality of life. Palliative care can help to manage pain, improve communication, and provide emotional support to patients and families. This can help to improve quality of life and reduce the impact of the disorder on individuals with Batten disease and their families.
Batten Disease Treatment is a rare, inherited, fatal autosomal recessive neural disorder that manifests itself in childhood but can take several years to manifest. Batten disease is one of roughly 50 diseases classified as lysosome shortage disorders. The batten disease, also known as Neuronal ceroid Lipofuscinoses (NCLs), is a group of life-limiting genetic neurogenerative diseases caused by gene abnormalities that prevent the genes from synthesising required protein. This disease is distinguished by bodily malfunction, which usually manifests itself around the age of 2-10 with symptoms such as seizures or the gradual onset of vision problems.
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